Member-only story
Long COVID Awareness Week
I became aware of the COVID-19 Longhauler Advocacy Project — and their weeklong Long COVID awareness project — last year when a friend with Long COVID made daily posts highlighting the effort. I didn’t know such an organization existed, and felt buoyed that there were people making a concerted effort to educate and empower people to keep this topic, if not on the forefront of people’s minds, at least on their radar (yes, I’m still having to explain to people on a regular basis that Long COVID is real, and what it is).
This year I had every intention of utilizing their resources, making daily posts, essentially doing my part to help amplify this critical messaging. And then seven weeks ago I went down with my 2nd COVID infection, almost three years to the day after my initial infection. Since then, I have been living in an eerie stretch of time that unfortunately closely mimics my initial infection — and I am squarely in the stretch where all of my neuro symptoms are happening in full force.
It’s been a strange limbo to live in. I’m part of a couple Long COVID Facebook groups, so have followed with great interest what happens to people after they get multiple infections. Do their Long COVID symptoms somehow improve after a subsequent infection? Stay the same? Get worse? When I joined these groups in 2022, I remember seeing posts about people actually feeling better after…
